Patient associations and partner networks
26 July 2022 2022-07-26 11:21Patient associations and partner networks
Patient associations and partner networks
Peripheral Nervous System and Muscles Department, Nice University Hospital
The Neuromuscular Disease Reference Centres work in collaboration with many partners (networks, patient associations etc.):
Patient associations
- AFM-Téléthon : Association Française contre les Myopathies (French Myopathies Association)
- AFNP : Association Française contre les Neuropathies Périphériques (French Peripheral Neuropathies Association)
- APF : Association des Paralysés de France (Disability France Association)
- APSP : Association pour les Soins Palliatifs PACA (PACA Association for Palliative Care)
- CMTFrance : Association des personnes concernées par la maladie de Charcot-Marie-Tooth et les neuropathies assimilées (Association for people living with Charcot-Marie-Tooth disease and related neuropathies)
- CIU-Santé : Centre d’Innovation et d’Usage en Santé (Centre for Health Innovation and Good Practice)
- FSHD Europe : International alliance supporting FacioScapuloHumeral Muscular Dystrophy research
- AFG : Association Francophone des Glycogénoses (Francophone Association for Glycogenosis)
- Maison de la Médecine et de la Culture (Centre for Medicine and Culture)
- Club Francophone ENMG (Francophone EMNG Club)
- Société Francophone d’Etudes et de Recherches sur les Handicaps de l’Enfance l’Enfance (Francophone Society for Childhood Disability Studies and Research)
Networks
- FHU Oncoage
- Université Côte d’Azur (UCA)
- TERDASP 06 : Plateforme Territoriale Réseau Douleur Accompagnement Soins Palliatifs des Alpes Maritimes (Alpes-Maritimes Pain Network Regional Platform: Palliative Care Support)
Learned societies
- SFM : Société Française de Myologie (French Myology Society)
- SFNP : Société Francophone du Nerf Périphérique (Francophone Peripheral Nervous System Society)
- Société Française de Neurologie (French Neurology Society)
- EAN: European Academy of Neurology
- TREAT-NMD
Institutional partners
Institutions
Nice Memory Resource and Research Centre
Association IA (Alzheimer’s Innovation Association)
The association Innovation Alzheimer (Alzheimer's Innovation) conducts research into Alzheimer's, autism, affect and autonomy.
The association France Alzheimer offers day care for patients and respite care for caregivers.
La Fondation Médéric Alzheimer’s objective is to help people with Alzheimer's and their loved ones to live better lives and, insofar as possible, delay the loss of autonomy through a combination of research in the social sciences and innovation in the field.
National information portal for autonomy in old age and family support
