{"id":7417,"date":"2022-07-26T09:16:34","date_gmt":"2022-07-26T07:16:34","guid":{"rendered":"https:\/\/www.prosol-elearning.com\/patient-associations-and-partner-networks\/"},"modified":"2022-07-26T11:21:56","modified_gmt":"2022-07-26T09:21:56","slug":"patient-associations-and-partner-networks","status":"publish","type":"page","link":"https:\/\/www.prosol-elearning.com\/en\/patient-associations-and-partner-networks\/","title":{"rendered":"Patient associations and partner networks"},"content":{"rendered":"\t\t<div data-elementor-type=\"wp-page\" data-elementor-id=\"7417\" class=\"elementor elementor-7417 elementor-5002\" data-elementor-post-type=\"page\">\n\t\t\t\t\t\t<section class=\"elementor-section elementor-top-section elementor-element elementor-element-48af345 elementor-section-boxed elementor-section-gap-beside-yes elementor-section-height-default elementor-section-height-default elementor-section-column-vertical-align-stretch\" data-id=\"48af345\" data-element_type=\"section\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-extended\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-100 elementor-top-column elementor-element elementor-element-7a7b2c3\" data-id=\"7a7b2c3\" data-element_type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap\">\n\t\t\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<section class=\"elementor-section elementor-top-section elementor-element elementor-element-b854fea elementor-section-boxed elementor-section-gap-beside-yes elementor-section-height-default elementor-section-height-default elementor-section-content-align-center elementor-section-column-vertical-align-stretch\" data-id=\"b854fea\" data-element_type=\"section\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-extended\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-100 elementor-top-column elementor-element elementor-element-137e9fc\" data-id=\"137e9fc\" data-element_type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-bdb6ac0 elementor-invisible elementor-widget elementor-widget-tm-heading\" data-id=\"bdb6ac0\" data-element_type=\"widget\" data-settings=\"{&quot;_animation&quot;:&quot;edumallFadeInUp&quot;}\" data-widget_type=\"tm-heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<div class=\"tm-modern-heading\">\n\t\t\t\n\t\t\t\t\t<div class=\"heading-primary-wrap\">\n\t\t\t<h2 class=\"heading-primary elementor-heading-title\">Patient associations and partner networks<\/h2>\t\t<\/div>\n\t\t\n\t\t\t\n\t\t\t\t\t<div class=\"heading-description-wrap\">\n\t\t\t<div class=\"heading-description\">\n\t\t\t\t<h2><strong><span style=\"color: #2ebfc2\">Peripheral Nervous System and Muscles Department, Nice University Hospital<\/span><\/strong><\/h2><p>The Neuromuscular Disease Reference Centres work in collaboration with many partners (networks, patient associations etc.):<\/p>\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<section class=\"elementor-section elementor-top-section elementor-element elementor-element-7dbe169 elementor-section-boxed elementor-section-gap-beside-yes elementor-section-height-default elementor-section-height-default elementor-section-content-align-center elementor-section-column-vertical-align-stretch\" data-id=\"7dbe169\" data-element_type=\"section\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-extended\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-50 elementor-top-column elementor-element elementor-element-5c15e29\" data-id=\"5c15e29\" data-element_type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-0e7cf06 elementor-invisible elementor-widget elementor-widget-tm-heading\" data-id=\"0e7cf06\" data-element_type=\"widget\" data-settings=\"{&quot;_animation&quot;:&quot;edumallFadeInUp&quot;}\" data-widget_type=\"tm-heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<div class=\"tm-modern-heading\">\n\t\t\t\n\t\t\t\n\t\t\t\n\t\t\t\t\t<div class=\"heading-description-wrap\">\n\t\t\t<div class=\"heading-description\">\n\t\t\t\t<h3 style=\"text-align: left\"><strong>Patient associations<\/strong><\/h3><ul style=\"text-align: left\"><li><a href=\"http:\/\/www.afm-telethon.fr\/\" target=\"_blank\" rel=\"noopener\"><strong>AFM<\/strong>-T\u00e9l\u00e9thon : Association Fran\u00e7aise contre les Myopathies (French Myopathies Association)<\/a><\/li><li><a href=\"http:\/\/www.neuropathies-peripheriques.org\/\" target=\"_blank\" rel=\"noopener\"><strong>AFNP<\/strong> : Association Fran\u00e7aise contre les Neuropathies P\u00e9riph\u00e9riques (French Peripheral Neuropathies Association) <\/a><\/li><li><a href=\"http:\/\/www.apf.asso.fr\/\" target=\"_blank\" rel=\"noopener\"><strong>APF<\/strong> : Association des Paralys\u00e9s de France (Disability France Association)<\/a><\/li><li><a href=\"http:\/\/www.apsp-paca.net\/association-soin-palliatifs.php\" target=\"_blank\" rel=\"noopener\"><strong>APSP <\/strong>: Association pour les Soins Palliatifs PACA (PACA Association for Palliative Care)<\/a><\/li><li><a href=\"http:\/\/www.cmt-france.org\/\" target=\"_blank\" rel=\"noopener\"><strong>CMTFrance <\/strong>: Association des personnes concern\u00e9es par la maladie de Charcot-Marie-Tooth et les neuropathies assimil\u00e9es (Association for people living with Charcot-Marie-Tooth disease and related neuropathies)<\/a><\/li><li><a href=\"http:\/\/www.ciusante.org\/\" target=\"_blank\" rel=\"noopener\"><strong>CIU-Sant\u00e9 <\/strong>: Centre d\u2019Innovation et d\u2019Usage en Sant\u00e9 (Centre for Health Innovation and Good Practice)<\/a><\/li><li><a href=\"https:\/\/fshdchampions.org\/about\/fshd-europe\/\" target=\"_blank\" rel=\"noopener\"><strong>FSHD Europe <\/strong>: International alliance supporting FacioScapuloHumeral Muscular Dystrophy research<\/a><\/li><li><a href=\"http:\/\/www.glycogenoses.org\/\" target=\"_blank\" rel=\"noopener\"><strong>AFG <\/strong>: Association Francophone des Glycog\u00e9noses (Francophone Association for Glycogenosis)<\/a><\/li><li><a href=\"http:\/\/www.medecine-culture.org\/\" target=\"_blank\" rel=\"noopener\"><strong>Maison de la M\u00e9decine et de la Culture (Centre for Medicine and Culture)<\/strong><\/a><\/li><li><a href=\"http:\/\/cf-enmg.blogspot.fr\/\" target=\"_blank\" rel=\"noopener\"><strong>Club Francophone ENMG (Francophone EMNG Club)<\/strong><\/a><\/li><li><a href=\"http:\/\/www.sferhe.org\/\" target=\"_blank\" rel=\"noopener\"><strong>Soci\u00e9t\u00e9 Francophone d\u2019Etudes et de Recherches sur les Handicaps de l\u2019Enfance l\u2019Enfance (Francophone Society for Childhood Disability Studies and Research)<\/strong><\/a><\/li><\/ul>\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t<div class=\"elementor-column elementor-col-50 elementor-top-column elementor-element elementor-element-8992dea\" data-id=\"8992dea\" data-element_type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-35f8e1f elementor-invisible elementor-widget elementor-widget-tm-heading\" data-id=\"35f8e1f\" data-element_type=\"widget\" data-settings=\"{&quot;_animation&quot;:&quot;edumallFadeInUp&quot;}\" data-widget_type=\"tm-heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<div class=\"tm-modern-heading\">\n\t\t\t\n\t\t\t\n\t\t\t\n\t\t\t\t\t<div class=\"heading-description-wrap\">\n\t\t\t<div class=\"heading-description\">\n\t\t\t\t<h3 style=\"text-align: left\"><strong><strong>Networks<\/strong><\/strong><\/h3>\r\n<ul style=\"text-align: left\">\r\n \t<li><a target=\"_blank\" href=\"http:\/\/www.oncoage.org\/\">FHU Oncoage<\/a><\/li>\r\n \t<li><a target=\"_blank\" href=\"http:\/\/univ-cotedazur.fr\/english\">Universit\u00e9 C\u00f4te d\u2019Azur (UCA)<\/a><\/li>\r\n \t<li><a target=\"_blank\" href=\"http:\/\/www.apsp-paca.net\/alpes-maritimes\/soins-palliatifs-06.php\"><strong>TERDASP 06<\/strong> : Plateforme Territoriale R\u00e9seau Douleur Accompagnement Soins Palliatifs des Alpes Maritimes (Alpes-Maritimes Pain Network Regional Platform: Palliative Care Support)<\/a><\/li>\r\n<\/ul>\r\n<h3 style=\"text-align: left\"><strong>Learned societies<\/strong><\/h3>\r\n<ul style=\"text-align: left\">\r\n \t<li><a target=\"_blank\" href=\"http:\/\/www.societedunerfperipherique.org\/\"><strong>SFM <\/strong>: Soci\u00e9t\u00e9 Fran\u00e7aise de Myologie (French Myology Society)<\/a><\/li>\r\n \t<li><a target=\"_blank\" href=\"http:\/\/www.societedunerfperipherique.org\/\"><strong>SFNP<\/strong> : Soci\u00e9t\u00e9 Francophone du Nerf P\u00e9riph\u00e9rique (Francophone Peripheral Nervous System Society)<\/a><\/li>\r\n \t<li><a target=\"_blank\" href=\"http:\/\/www.sf-neuro.org\/\"><strong>Soci\u00e9t\u00e9 Fran\u00e7aise de Neurologie (French Neurology Society)<\/strong><\/a><\/li>\r\n \t<li><a target=\"_blank\" href=\"https:\/\/www.ean.org\/\"><strong>EAN<\/strong>: European Academy of Neurology<\/a><\/li>\r\n \t<li><a target=\"_blank\" href=\"http:\/\/www.treat-nmd.eu\/\"><strong>TREAT-NMD<\/strong><\/a><\/li>\r\n<\/ul>\r\n<h3 style=\"text-align: left\"><strong>Institutional partners<\/strong><em> <\/em><\/h3>\r\n<ul style=\"text-align: left\">\r\n \t<li><a target=\"_blank\" href=\"http:\/\/www.orpha.net\/consor\/cgi-bin\/index.php?lng=FR\"><strong>Orphanet <\/strong>: The portal for rare diseases and orphan drugs <\/a><\/li>\r\n \t<li><a target=\"_blank\" href=\"http:\/\/www.radico.fr\/fr\/\"><strong>RADICO<\/strong><\/a><\/li>\r\n \t<li><a target=\"_blank\" href=\"http:\/\/www.ecrin.org\/\"><strong>E-CRIN<\/strong><\/a><\/li>\r\n<\/ul>\r\n<h3 style=\"text-align: left\"><strong>Institutions<\/strong><\/h3>\r\n<ul>\r\n \t<li style=\"text-align: left\"><a target=\"_blank\" href=\"https:\/\/www.ars.sante.fr\/\"><strong>Regional Health Authority (ARS)<\/strong><\/a><\/li>\r\n \t<li style=\"text-align: left\"><a target=\"_blank\" href=\"http:\/\/www.has-sante.fr\/portail\/\"><strong>National Health Authority (HAS)<\/strong><\/a><\/li>\r\n<\/ul>\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<section class=\"elementor-section elementor-top-section elementor-element elementor-element-68bd12f elementor-section-boxed elementor-section-gap-beside-yes elementor-section-height-default elementor-section-height-default elementor-section-content-align-center elementor-section-column-vertical-align-stretch\" data-id=\"68bd12f\" data-element_type=\"section\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-extended\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-100 elementor-top-column elementor-element elementor-element-d9207f8\" data-id=\"d9207f8\" data-element_type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-ee4a673 elementor-invisible elementor-widget elementor-widget-tm-heading\" data-id=\"ee4a673\" data-element_type=\"widget\" data-settings=\"{&quot;_animation&quot;:&quot;edumallFadeInUp&quot;}\" data-widget_type=\"tm-heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<div class=\"tm-modern-heading\">\n\t\t\t\n\t\t\t\n\t\t\t\n\t\t\t\t\t<div class=\"heading-description-wrap\">\n\t\t\t<div class=\"heading-description\">\n\t\t\t\t<h2><strong><span style=\"color: #2ebfc2\">Nice Memory Resource and Research Centre<\/span><\/strong><\/h2><p>\u00a0<\/p>\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<section class=\"elementor-section elementor-top-section elementor-element elementor-element-63b08bf elementor-section-boxed elementor-section-gap-beside-yes elementor-section-height-default elementor-section-height-default elementor-section-content-align-center elementor-section-column-vertical-align-stretch\" data-id=\"63b08bf\" data-element_type=\"section\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-extended\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-50 elementor-top-column elementor-element elementor-element-8f2015a\" data-id=\"8f2015a\" data-element_type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-313b007 elementor-invisible elementor-widget elementor-widget-tm-heading\" data-id=\"313b007\" data-element_type=\"widget\" data-settings=\"{&quot;_animation&quot;:&quot;edumallFadeInUp&quot;}\" data-widget_type=\"tm-heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<div class=\"tm-modern-heading\">\n\t\t\t\n\t\t\t\n\t\t\t\n\t\t\t\t\t<div class=\"heading-description-wrap\">\n\t\t\t<div class=\"heading-description\">\n\t\t\t\t<p style=\"text-align: left\"><strong><a href=\"http:\/\/www.innovation-alzheimer.fr\/accueil\/\" target=\"_blank\" rel=\"noopener\">Association IA (Alzheimer\u2019s Innovation Association)<\/a><\/strong><\/p><p style=\"text-align: left\">The association Innovation Alzheimer (Alzheimer's Innovation) conducts research into Alzheimer's, autism, affect and autonomy.<\/p><p style=\"text-align: left\"><a href=\"https:\/\/www.francealzheimer.org\/alpesmaritimes\/?gclid=Cj0KCQiA-K2MBhC-ARIsAMtLKRs1DIPqAvJJCNf3ZPUl3ScanJRcn6HAT49s27Leyhm_Ms8eb34RH8YaArHxEALw_wcB\" target=\"_blank\" rel=\"noopener\"><strong>France Alzheimer 06<\/strong><\/a><\/p><p style=\"text-align: left\">The association France Alzheimer offers day care for patients and respite care for caregivers.<\/p>\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t<div class=\"elementor-column elementor-col-50 elementor-top-column elementor-element elementor-element-ff59c5f\" data-id=\"ff59c5f\" data-element_type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-1895bc4 elementor-invisible elementor-widget elementor-widget-tm-heading\" data-id=\"1895bc4\" data-element_type=\"widget\" data-settings=\"{&quot;_animation&quot;:&quot;edumallFadeInUp&quot;}\" data-widget_type=\"tm-heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<div class=\"tm-modern-heading\">\n\t\t\t\n\t\t\t\n\t\t\t\n\t\t\t\t\t<div class=\"heading-description-wrap\">\n\t\t\t<div class=\"heading-description\">\n\t\t\t\t<p style=\"text-align: left\"><a href=\"https:\/\/www.fondation-mederic-alzheimer.org\/\" target=\"_blank\" rel=\"noopener\"><strong>Fondation Mederic Alzheimer<\/strong><\/a><\/p><p style=\"text-align: left\">La Fondation Me\u0301de\u0301ric Alzheimer\u2019s objective is to help people with Alzheimer's and their loved ones to live better lives and, insofar as possible, delay the loss of autonomy through a combination of research in the social sciences and innovation in the field.<\/p><p style=\"text-align: left\"><strong>National information portal for autonomy in old age and family support<\/strong><\/p><p style=\"text-align: left\"><a href=\"https:\/\/www.pour-les-personnes-agees.gouv.fr\/\" target=\"_blank\" rel=\"noopener\">https:\/\/www.pour-les-personnes-agees.gouv.fr\/<\/a><\/p>\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<section class=\"elementor-section elementor-top-section elementor-element elementor-element-2bd7c6b elementor-section-boxed elementor-section-gap-beside-yes elementor-section-height-default elementor-section-height-default elementor-section-content-align-center elementor-section-column-vertical-align-stretch\" data-id=\"2bd7c6b\" data-element_type=\"section\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-extended\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-100 elementor-top-column elementor-element elementor-element-30639e4\" data-id=\"30639e4\" data-element_type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-f243831 elementor-invisible elementor-widget elementor-widget-tm-heading\" data-id=\"f243831\" data-element_type=\"widget\" data-settings=\"{&quot;_animation&quot;:&quot;edumallFadeInUp&quot;}\" data-widget_type=\"tm-heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<div class=\"tm-modern-heading\">\n\t\t\t\n\t\t\t\n\t\t\t\n\t\t\t\t\t<div class=\"heading-description-wrap\">\n\t\t\t<div class=\"heading-description\">\n\t\t\t\t<h2><strong><span style=\"color: #2ebfc2\">Lenval Foundation \u2013 Autism Resource Centre<\/span><\/strong><\/h2>\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<section class=\"elementor-section elementor-top-section elementor-element elementor-element-c06c102 elementor-section-boxed elementor-section-gap-beside-yes elementor-section-height-default elementor-section-height-default elementor-section-content-align-center elementor-section-column-vertical-align-stretch\" data-id=\"c06c102\" data-element_type=\"section\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-extended\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-100 elementor-top-column elementor-element elementor-element-b19121c\" data-id=\"b19121c\" data-element_type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-79a46c7 elementor-invisible elementor-widget elementor-widget-tm-heading\" data-id=\"79a46c7\" data-element_type=\"widget\" data-settings=\"{&quot;_animation&quot;:&quot;edumallFadeInUp&quot;}\" data-widget_type=\"tm-heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<div class=\"tm-modern-heading\">\n\t\t\t\n\t\t\t\n\t\t\t\n\t\t\t\t\t<div class=\"heading-description-wrap\">\n\t\t\t<div class=\"heading-description\">\n\t\t\t\t<p style=\"text-align: center\"><strong><a target=\"_blank\" href=\"https:\/\/www.lesblousesroses.asso.fr\/fr\/\">Les blouses roses<\/a><\/strong>\r\n<strong><a target=\"_blank\" href=\"https:\/\/associationadrien.org\/\">Association Adrien<\/a><\/strong>\r\n<strong><a target=\"_blank\" href=\"https:\/\/cekedubonheur.fr\/\">C\u00e9KeDuBonheur<\/a><\/strong>\r\n<strong><a target=\"_blank\" href=\"https:\/\/www.makeawishfrance.org\/\">Make a wish<\/a><\/strong>\r\n<strong><a target=\"_blank\" href=\"https:\/\/www.enfantstaretmatch.com\/\">Enfant Star &amp; Match<\/a>\r\n<\/strong><strong><a target=\"_blank\" href=\"http:\/\/www.sourireetpartage.com\/\">Sourire et partage<\/a><\/strong>\r\n<strong><a target=\"_blank\" href=\"https:\/\/www.asso-lea.org\/\">Association Lea<\/a><\/strong>\r\n<strong><a target=\"_blank\" href=\"https:\/\/associations.nicecotedazur.org\/organizations\/2853\">Association vivre en couleur<\/a><\/strong>\r\n<strong><a target=\"_blank\" href=\"https:\/\/www.souriredenfant.fr\/\">Association Sourire d\u2019enfant<\/a><\/strong><\/p>\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<\/div>\n\t\t","protected":false},"excerpt":{"rendered":"<p>Patient associations and partner networks Peripheral Nervous System and Muscles Department, Nice University Hospital The Neuromuscular Disease Reference Centres work in collaboration with many partners (networks, patient associations etc.): Patient associations AFM-T\u00e9l\u00e9thon : Association Fran\u00e7aise contre les Myopathies (French Myopathies Association) AFNP : Association Fran\u00e7aise contre les Neuropathies P\u00e9riph\u00e9riques (French Peripheral Neuropathies Association) APF : Association des Paralys\u00e9s de France (Disability France Association) APSP : Association pour les Soins Palliatifs PACA (PACA Association for Palliative Care) CMTFrance : Association des personnes concern\u00e9es par la maladie de Charcot-Marie-Tooth et les neuropathies assimil\u00e9es (Association for people living with Charcot-Marie-Tooth disease and related neuropathies) CIU-Sant\u00e9 : Centre d\u2019Innovation et d\u2019Usage en Sant\u00e9 (Centre for Health Innovation and Good Practice) FSHD Europe : International alliance supporting FacioScapuloHumeral Muscular Dystrophy research AFG : Association Francophone des Glycog\u00e9noses (Francophone Association for Glycogenosis) Maison de la M\u00e9decine et de la Culture (Centre for Medicine and Culture) Club Francophone ENMG (Francophone EMNG Club) Soci\u00e9t\u00e9 Francophone d\u2019Etudes et de Recherches sur les Handicaps de l\u2019Enfance l\u2019Enfance (Francophone Society for Childhood Disability Studies and Research) Networks FHU Oncoage Universit\u00e9 C\u00f4te d\u2019Azur (UCA) TERDASP 06 : Plateforme Territoriale R\u00e9seau Douleur Accompagnement Soins Palliatifs des Alpes Maritimes (Alpes-Maritimes Pain Network Regional Platform: Palliative Care Support) Learned societies SFM : Soci\u00e9t\u00e9 Fran\u00e7aise de Myologie (French Myology Society) SFNP : Soci\u00e9t\u00e9 Francophone du Nerf P\u00e9riph\u00e9rique (Francophone Peripheral Nervous System Society) Soci\u00e9t\u00e9 Fran\u00e7aise de Neurologie (French Neurology Society) EAN: European Academy of Neurology TREAT-NMD Institutional partners Orphanet : The portal for rare diseases and orphan drugs RADICO E-CRIN Institutions Regional Health Authority (ARS) National Health Authority (HAS) Nice Memory Resource and Research Centre Association IA (Alzheimer\u2019s Innovation Association) The association Innovation Alzheimer (Alzheimer&#8217;s Innovation) conducts research into Alzheimer&#8217;s, autism, affect and autonomy. France Alzheimer 06 The association France Alzheimer offers day care for patients and respite care for caregivers. Fondation Mederic Alzheimer La Fondation Me\u0301de\u0301ric Alzheimer\u2019s objective is to help people with Alzheimer&#8217;s and their loved ones to live better lives and, insofar as possible, delay the loss of autonomy through a combination of research in the social sciences and innovation in the field. National information portal for autonomy in old age and family support https:\/\/www.pour-les-personnes-agees.gouv.fr\/ Lenval Foundation \u2013 Autism Resource Centre Les blouses roses Association Adrien C\u00e9KeDuBonheur Make a wish Enfant Star &amp; Match Sourire et partage Association Lea Association vivre en couleur Association Sourire d\u2019enfant<\/p>\n","protected":false},"author":1,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"footnotes":""},"_links":{"self":[{"href":"https:\/\/www.prosol-elearning.com\/en\/wp-json\/wp\/v2\/pages\/7417"}],"collection":[{"href":"https:\/\/www.prosol-elearning.com\/en\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/www.prosol-elearning.com\/en\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/www.prosol-elearning.com\/en\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/www.prosol-elearning.com\/en\/wp-json\/wp\/v2\/comments?post=7417"}],"version-history":[{"count":4,"href":"https:\/\/www.prosol-elearning.com\/en\/wp-json\/wp\/v2\/pages\/7417\/revisions"}],"predecessor-version":[{"id":7479,"href":"https:\/\/www.prosol-elearning.com\/en\/wp-json\/wp\/v2\/pages\/7417\/revisions\/7479"}],"wp:attachment":[{"href":"https:\/\/www.prosol-elearning.com\/en\/wp-json\/wp\/v2\/media?parent=7417"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}